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who can I contact to get into some of the medical trials for people with Lupus?

I am a man with lupus and the medicines I am taking are not working and the joint and muscle pain is making me nuts! I am taking so much morphine to help with the pain but it’s not helping much. please if there is anybody that can help me please let me know.

Go to www.clinicaltrials.gov and search for lupus.

Each clinical trial has different criteria for patients to enroll in the trial. And please understand, you might get the placebo and not the real medication at all.

If you want suggestions for living well with lupus, feel free to send me a message. I have SLE with major organ involvement and it is now well contained.

Linda

This entry was posted on Tuesday, February 9th, 2010 at 9:34 pm and is filed under contact with medical. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

4 Responses to “who can I contact to get into some of the medical trials for people with Lupus?”

  1. What is lupus?
    References :

  2. National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
    http://www.niams.nih.gov/

    and check this site out- http://clinicaltrials.gov

    Both US govt sites.

    For people wondering what LUPUS is it is a dissease where the body’s immune system attacks the person believing it to be a threat when in fact it is just being an ass and hurting people with terrible pain. It can also be fatal.

    Assuming you are in the US.
    References :
    My body is being an ass too.

  3. I’m a teenage black girl and i also suffer from lupus as well. Some days I can just about move! Which medicines are you taking? My doctor has put me on hydroxychloroquine and told me to take steroids in the tablet form, but i refused to take the steroid tablets because of the consequences. However, they decided it was best if i did take steroids but as an injection instead (they said it was different from the tablet form :S). I currently get my injections every 6 weeks and it has had a GREAT effect on my joints and muscle pains.

    You can also try and attend a Lupus support group and have meetings with other Lupus sufferers.
    References :

  4. Go to http://www.clinicaltrials.gov and search for lupus.

    Each clinical trial has different criteria for patients to enroll in the trial. And please understand, you might get the placebo and not the real medication at all.

    If you want suggestions for living well with lupus, feel free to send me a message. I have SLE with major organ involvement and it is now well contained.

    Linda
    References :

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